Living with Alpha-Gal Syndrome (AGS) often means a life of constant vigilance.
What Is the Alpha-Gal Syndrome Inclusion Act? The Alpha-Gal Syndrome Inclusion Act (H.R. 1178) is a bipartisan bill introduced to the U.S. House of Representatives in 2025. You can learn more about it, and find out if your local congress person is already co-sponsoring it at govtracks.us . The bill aims to add Alpha-Gal Syndrome as the 10th most prevalent allergen in the U.S. This would support clearer food labeling for mammal-derived ingredients; a vital step toward public recognition and systemic support for AGS patients.
How This Bill Could Improve The Lives of Those With AGS
Thousands of people are living with Alpha-Gal Syndrome, often undiagnosed or misdiagnosed for years. The symptoms can be life-threatening, yet medical awareness and public support remain shockingly low. Passing this bill would be life-changing for individuals with and the caretakers of those with Alpha-Gal Syndrome in many ways, such as:
- Differentiation between plant or animal sourced ingredients (such as glycerin or magnesium stearate)
- Makes sourcing AGS friendly foods and products easier
- No more hiding mammalian based ingredients behind “natural flavoring labels”
- Cost savings by not having to pay extra for vegan certified products
- Not waiting days to source safe prescription drugs that should be obtained immediately
- Makes it more difficult for insurance companies to deny specific brands of AGS-friendly medications or the use of a compounding pharmacy
- The peace of mind of knowing about product ingredient changes
- Makes it possible for food scanner apps to distinguish between a safe and non safe product
How You Can Help (Even If You Don’t Have AGS)
This isn’t just a fight for those of us with Alpha-Gal Syndrome—it’s a call to action for our families, friends, and communities. If someone you care about has AGS, your voice can help amplify ours.
1. Contact Your Congressional Representatives
Find your elected officials at congress.gov/members, then send a message like this: “I’m asking you to support H.R. 1178—the Alpha-Gal Syndrome Inclusion Act. This bipartisan bill is critical for improving awareness, medical training, and public health support for a condition that affects thousands of Americans. Please consider co-sponsoring and advocating for its passage.” Personal stories make a huge difference—don’t be afraid to share how AGS has affected your life or someone you love.
2. Follow and Support Advocacy Groups
These organizations are working hard to raise awareness and fight for our rights:
Alpha-Gal Alliance Action Fund — advancing policies
Alpha-Gal Information: — education and resources for AGS patients and providers.
Alpha-Gal Foundation– awareness and eduction about AGS
Support them by donating, volunteering, or simply sharing their posts.
3. Raise Awareness on Social Media
Use your platform—big or small—to spread the word: Share this blog Use hashtags like #AlphaGalSyndrome, #AGSInclusionAct, and #SupportH1178 Talk about what life with AGS is really like, or what you’ve learned as a supporter.
The time to act, is now
Though there is little understanding as to why, Alpha-Gal cases are on the rise and the CDC suspects nearly 500k people in the US are currently affected. We will see a quick change in these numbers since states are only now beginning to report AGS cases as recordable. For more information on how you can do your due diligence to help those with AGS as well as protect those without, I highly suggest joining and supporting the Alpha-Gal Alliance ActionFund on their quest to see this bill is passed.
- Mahinahttps://www.thealphagalpal.com/author/mahina/
- Mahinahttps://www.thealphagalpal.com/author/mahina/
- Mahinahttps://www.thealphagalpal.com/author/mahina/
- Mahinahttps://www.thealphagalpal.com/author/mahina/
